Joint Statement on Implementing the General Data Protection Regulation to Maintain a Competitive Environment for Research in Europe: Position of Research and Patient Organisations
This joint statement on the implementation of the Data Protection Regulation (DPR), facilitated by Science Europe and Wellcome and released by the wider research community, highlights the crucial role Member States must now play in its implementation by reviewing and amending their current laws to enable research to take place.
In this joint statement research and Innovation stakeholders call on the EU institutions to seek a balanced approach to data sharing in response to the European Commission’s proposal for a revision of the Directive on re-use of public sector information (PSI Directive). While the partners are supportive of the European agenda to promote Open Science and innovation, and share a common commitment to the principle of making research data ‘as open as possible and as closed as necessary’, there is a need to focus on the optimal re-use of research data and not on the (unconditional) opening of such data.
Response to the Consultation on the Review of the Directive on the Re-Use of Public Sector Information
Science Europe supports the principle that research data should be “as open as possible and as closed as necessary.” However, the particularity of research data as well as of data about research activities requires careful consideration on which aspects are better dealt with by legislative acts or by guidelines developed by the research sector.
The Benefits of Personal Data Processing for Medical Sciences in the Context of Protection of Patient Privacy and Safety
This paper expresses the concerns of the medical and health research communities about the lack of a specific consideration when regulating the privacy of individuals and protecting personal data in the context of medical and health research in the General Data Protection Regulation.