How to Transform Big Data into Better Health: Envisioning a Health Big Data Ecosystem for Advancing Biomedical Research and Improving Health Outcomes in Europe
This report – which consolidates the outcomes of a two day workshop co-hosted with the Italian National Institute for Nuclear Physics (INFN) in November 2015 – identifies and acknowledges the challenges in transforming big data into better health and makes a number of key recommendations.
Developed by experts from Science Europe Member Organisations, this guide aims to align research data management (RDM) requirements across research organisations. Originally released in 2019, it was updated in January 2021 to include guidance to support the evaluation of data management plans (DMPs).
In its response to the European Data Protection Board (EDPB) Science Europe welcomes the detailed guidance on identifying whether controllership is joint or separate within a given collaboration and identifying an appropriate legal form to establish an agreement. However further clarification through the EDPB Guidelines would be helpful for public research organisations.
Response to the European Commission Consultation on the Horizon Europe First Strategic Plan 2021-2024
In its response to the European Commission, Science Europe outlines numerous topics that should be further addressed in order to create the best possible start for Horizon Europe. Such developments include striking the right balance between research and innovation, embedding the whole spectrum of equality aspects, better integration of Social Sciences and Humanities, and the creation of synergies between the various parts of the programme.
In its response to the European Commission, Science Europe highlights that future EU legislation on AI needs to strike the right balance between safeguards for users and developers of AI systems, and a legal environment that fosters R&I.
In its response to the European Commission, Science Europe highlights that the foreseen scope of the new legislation is not clearly defined and greater clarification should be introduced to ensure that the Digital Services Act does not have unintended effects on research.
Science Europe and the OECD Global Science Forum teamed up to identify ways to optimise the operation and use of research infrastructures at national level.
In its response to the European Commission Roadmap for an upcoming legislative proposal on the governance of common European data spaces, Science Europe reinforces the need to consider sectoral policies to ensure coherence.
The Research and Innovation (R&I) sector has been sacrificed in these budget negotiations, when it should have been the spearhead of an ambitious, future-oriented, knowledge-based plan for Europe. Science Europe now calls the European Parliament and the European Commission, as the protectors of European R&I, to continue taking a strong stand in favour of a larger budget for Horizon Europe
Science Europe calls on research funding and performing organisations to continuously evaluate their research assessment processes to ensure that they are effective, efficient, fair, and transparent.